Ups & Downs

Sorry that all my posts are hospital based...
This blog is a sort of journal and so I write about what is going on for me.

And for me right now, Ben being in the hospital is pretty consuming.
He has up days and down days.
I guess this is normal.

Saturday was a bad day.
He was very nauseous and in a lot of pain.
And the output in his NG tube was excessive.
This was out of the norm, because he had been feeling so good.

Sunday was a good day.
Ben got to have limited ice chips. :)
Lincoln had to work so I took the girls to the hospital with me.
They spent a good part of the day with Ben and I.
The girls and I also got to see a special showing of the Hannah Montana Movie,
right there in an auditorium in the hospital.
Apparently, Disney gives them quite a few movies a year to show
while there still playing in theatres. This is a great thing.

Ben opted out. He decided to take a nap.
He did say if Miley Cyrus had been in the lobby promoting...
well then he would have gone.
Hospital gown, tubes and all.

Tomorrow is another day....
Hopefully a good one.

42.5 Kilos

Ben's weight today. That's 93.5 pounds.
2.2 pounds per kilo. I know, not much for a 15 year old boy.
Now that they have started feeding him nutrients by his PICC
he has to be weighed every day.
Yesterday he weighed in at a 43.9 kilos.
I swear he peed out all that weight. lol.
The powers that be, want to make sure he isn't getting to thin.
Although, I don't know what they would do about it.
He can't have ANYTHING by mouth.
He can't even brush his teeth.
"He might suck water out of the toothbrush" they say. :)
I know I would if I were him.

Things are progressing.
Each day he feels a little better.
Still not looking like he'll be home any time soon.
Maybe....Next Friday. If were very lucky.
No 4-wheeling again for most of this summer.
This is a real downer to him
and the fact he will miss 9th grade Lagoon Day.
I totally agreed with him, that does indeed suck.

Thanks for the visitors.
He really appreciates the break in a monotonous day.
And the chocolate donuts are my break in the day.

PICC Line

So every once in awhile...
I have a spare moment.
Luckily for me they have Internet here at the hospital.
So today while Ben gets a PICC line...
I decided to check the blog and post.

I had to leave the room.
Blood and all.
Plus they do this procedure in a very sterile environment.
Me, not dressed all sterile.

He has to have this line because in a delirious state on Saturday night,
he pulled his feeding tube.
This had to have been a feat. The tube was at least two feet long.
Completely out. Laying on the bed.
Hmmmm. He can't even remember.
And the Dad slept through it to.
So they are giving him a central line to feed him.

He says T.V. sucks!!
To many commercials with food.
He probably wont get any food or water by mouth for at least another 5-7 days.
He believes he is starving and wasting away.

All else in life continues on as normal as possible.
Thank goodness for the teenager.

PCMC

Primary Children's Medical Center.
This really is a great place.
They have the most wonderful staff
and you know your getting great care if your there.

Which we are. :(
Benjamin went in for a rushed surgery on Friday.
It was definitely NOT planned.

It's going to be a long haul so if I am absent....
Well you know why.

My poor baby boy ;)
That is what he is...my baby boy...
even though he is 15.
He is not a happy camper.